Being a #Spoonie

Hey everyone,

Sometimes I feel like the only people who understand me, understand my limitation and pain and who I can speak openly about symptoms even the embarrassing ones are other spoonies. I have been speaking to more and more people with chronic invisible illnesses through useing the hash #spoonie on Twitter, but when I speak to or are with people who don't have these problems I have trouble communicating and getting them to understand how I feel. Most people sort of ignore my limitations and are solely focused on what they want or need.

They don't seem to understand the fact that you haven't slept for three nights, in extreme amount of pain, low mobility and the fact that you had intense diarrhoea all day with stomach pains. Nope all their focused on is the fact that in their view you have made up and excuse of "illness" to not come to their party or missed lunch with them or haven't made the exhausting trip of going round their house. How selfish of you!

The only place you seem to have peace is when your talking to people who truly understand how you feel. The great thing is that they don't say your moaning and that someone is "worse then you are" they understand and give you support. I feel that some people in my life have tunnel vision and only think of themselves so that makes me more hardheaded and stubborn so I will survive with the help of my husband and we will say that we did it without there help!

So in conclusion I love being a #spoonie! I have people I have never met being more sportive them some people in my life. So I support and are thankful to all my #spoonie warriors who together we can fight against anything that is thrown at us!

Living with a chronic illness, running our own race, following our own path!